Join the SAMD9/L Community
Patients. Families. Clinicians. Researchers. Supporters. One connected community.
SAMD9 and SAMD9L disorders are rare, and the people affected by them are scattered around the world. Building a connected community gives us a stronger voice, helps patients and families find one another, and creates a direct link between our community and the clinicians and researchers working to understand and treat these disorders.
Whether you are living with a SAMD9/L disorder, caring for someone who is, researching or treating these conditions, or simply want to support our community, we invite you to join us.
Joining allows the SAMD9/L Foundation to communicate with you directly about research, community news, events, resources, opportunities to participate, and other developments relevant to SAMD9/L disorders.
Already in one of our Facebook groups?
Please join here too. Our Facebook communities are valuable places for patients and families to connect, but joining the SAMD9/L Community Network allows us to reach you directly when something important arises.
